SCD Resources for Clinicians
The American Society of Hematology (ASH) is committed to helping those who treat sickle cell disease (SCD) provide quality care, continue their professional development, and enhance their knowledge and expertise. As part of the Society’s larger effort to conquer SCD worldwide, ASH has developed the following resources for clinicians working to advance outcomes for persons with this disease.
ASH has also announced plans to develop clinical guidelines on the management of sickle cell disease. The guidelines are expected to be published in 2019.
Evidence-based pocket guides developed by ASH to help practitioners improve the quality of care provided to patients with sickle cell disease
A service for ASH members that helps facilitate the exchange of information between hematologists and their peers on topics including sickle cell disease
Assessment and summary forms designed to facilitate conversations between patients, parents, and physicians as the patient transitions to adult care
Articles on sickle cell disease published in Blood, the official journal of the American Society of Hematology
An overview of sickle cell disease for patients, including an explanation on the difference between sickle cell trait and sickle cell disease
Information and resources addressing issues related to pain management from vested stakeholder groups
A series of videos designed to supplement education in benign hematology for fellows
SCD Treatment Demonstration Regional Program
In order to increase provider confidence in treating in individuals with SCD, grantees of the Health Resources and Services Administration’s (HRSA) SCD Treatment Demonstration Regional Program are using the Project ECHO® (Extension for Community Healthcare Outcomes) model of telementoring and training. The program’s objective is to connect providers with SCD experts so that they can increase their knowledge about best practices in managing individuals with this complex disease.
To learn more about the program, please contact the program lead in your region.
|Region||Contact and Project Lead|
Connecticut, Delaware, District of Columbia, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, Virginia, and West Virginia
Principal Investigator: Rosalyn Stewart, MD
Johns Hopkins Medicine
Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and Tennessee
Shirley H. Miller, MA
Principal Investigator: Ifeyinwa (Ify) Osunkwo, MD
Carolinas HealthCare System, Charlotte, NC
Illinois, Indiana, Michigan, Minnesota, North Dakota, Ohio, South Dakota, and Wisconsin
|Primary Contact and Principal Investigator:
Lisa Shook, MA
Cincinnati Children’s Hospital, Cincinnati, OH
|Heartland and Southwest Region
Arkansas, Iowa, Kansas, Louisiana, Missouri, Nebraska, Oklahoma, and Texas
Regina A. Abel, PhD
Allison A. King, MD
Washington University in St. Louis, St. Louis, MO
Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming
Diane J. Nugent, MD
Center for Inherited Blood Disorders, Orange, CA
- ASH Sickle Cell Disease Initiative
ASH's multi-faceted initiative to identify the highest priority actions needed to improve outcomes for individuals with SCD in the U.S. and globally.
- ASH Sickle Cell Disease Initiative Fund
Your donation to the ASH Sickle Cell Disease Initiative Fund will make a real difference in improving care, early diagnosis, and treatment for all those affected by sickle cell disease.
- 2017 ASH Advocacy Efforts Related to Sickle Cell Disease and Sickle Cell Trait
ASH continues to invest in and explore the important actions needed to make a significant difference in sickle cell disease (SCD) access to care, research, and global issues. Learn about the major advocacy-related initiatives undertaken by ASH in 2017.