Honoring ASH's Commitment to Sickle Cell Disease
ASH marked 10 years of collaborating with stakeholders to enhance access to care, prioritize meaningful research, and support global action for individuals living with sickle cell disease.
Making a Positive Impact
The ASH Center for Sickle Cell Disease Initiatives released a 10-year impact report that detailed the Society’s progress in leading a comprehensive and determined effort to strengthen the global response to SCD.
“From scientific discovery to global action, ASH has stood at the center of progress. ASH has worked to elevate SCD as a public health priority — driven by urgency, a need for better outcomes, and a deep commitment to lasting impact."
ASH SCD 10-Year Impact Report
Leading on the Global Stage
The Consortium on Newborn Screening in Africa (CONSA), operating in its fifth year, is an international network that demonstrates the benefits of newborn screening and early interventions for children with SCD in sub-Saharan Africa.
By the Numbers
CONSA was honored by ASAE with a 2025 Power of Associations Summit Award for its meaningful impact on the world.
CONSA activities include:
- Growing screening and diagnostic capacity
- Advancing digital health with creation of the CONSA mobile app
- Training health care providers on SCD diagnosis and care
- Improving clinical care follow-up and retention in care
- Raising public awareness about SCD
Advocating on Capitol Hill
ASH remained committed to sickle cell disease advocacy, successfully pushing for the re-introduction of the Sickle Cell Disease Comprehensive Care Act in both the House and Senate. The bill would improve care for Medicaid beneficiaries living with SCD.
Showcasing SCD Data and Research
The ASH Research Collaborative (ASH RC) released its first Sickle Cell Disease Data Hub Report and the Living with Sickle Cell Disease Report. Designed for clinicians, researchers, and the SCD community, the report includes information on patient demographics, common comorbidities, medication prescribing patterns, and more.
On the research front, ASH highlighted five studies presented at the 2025 ASH Annual Meeting which revealed new opportunities to improve care for people living with SCD. A systematic review published in Blood found that sickle cell trait does not cause “sickle cell crisis” and exertion-related death.
Providing Clinical Resources
ASH finalized two clinical quality measures on appropriate management of SCD-related pain in emergency department settings, for use by health care systems and for research.
Explore the 2025 Annual Report
Get Involved
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ASH Foundation
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