American Society of Hematology

ASH Sickle Cell Disease Centers Workshop

The 2020 ASH Sickle Cell Disease Centers Workshop application will be available on March 1, 2020, and will be due May 1, 2020.

September 29, 2020 - October 2, 2020
ASH Headquarters, Washington, DC

ASH will host a workshop in September 2020 to train health care professionals to establish a clinical center focused on the needs of adults living with SCD. The workshop will walk participants through the common components of such centers, the process for developing a business plan and advocating to stakeholders, the ins and outs of operations, and approaches to measuring impact and improve on the quality of care provided in these centers.

The faculty assembled for this workshop will be drawn from an array of these comprehensive care centers to address the nuts and bolts of how these centers were developed and implemented and how they are being sustained. At the end of the workshop, participants will have a professional network of leaders in the area of adult sickle cell disease care as well as peers working toward implementation of programs all addressing the same goal, to improve outcomes for people living with sickle cell disease.

About the Workshop

The ASH Sickle Cell Disease Centers Workshop will take place at ASH Headquarters in Washington, DC and the Fairmont Washington, DC, starting with a welcome dinner the evening of Tuesday, September 29, and concluding no later than 3:00 p.m. on Friday, October 2. (Selected participants should schedule return flights no earlier than 6:00 p.m. on Friday, October 2.) Workshop participants’ travel and lodging expenses for this session will be paid for by ASH.

Following the September 2020 in-person workshop in Washington, DC, the event includes two additional components:

  • Follow-on session at the 2020 ASH Annual Meeting in San Diego, CA
  • Follow-on webinars throughout 2021
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Key Dates

Workshop Application AvailableMarch 1, 2020
Workshop Application DeadlineMay 1, 2020
Workshop Acceptances DeliveredJune 15, 2020
Workshop DatesSeptember 29, 2020 – October 2, 2020
2020 ASH Annual MeetingDecember 5-8, 2020
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Workshop Curriculum

The workshop will walk through the components and services of a comprehensive sickle cell disease center, the development of a business plan for this center, advocacy for that plan, its implementation, and the assessment and improvement of a center. Specific topics will include:

  • Components of a center that uses a population-based approach with institutional buy-in
    • Medical leadership
    • Pain management plan
    • Transfusion plan
    • Mental health plan
    • Care management and coordination plan
  • Developing and advocating for a business plan
    • Understanding current services and gaps
    • Working with the local community
    • Building a business plan
    • Selling your proposal
  • Implementing a center
    • Building your team
    • Building processes and procedures
    • Addressing the nuts and bolts
  • Assessing and improving a center
    • Deciding what and how to measure
    • Understanding the basics for quality improvement
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Eligibility Requirements

Tackling sickle cell disease requires a team effort. Therefore, ASH is inviting individuals and teams to apply to attend the workshop.

  • Applicants should be focused on developing comprehensive care for adults living with sickle cell disease.
  • Applicants should have the support of a medical champion for the center; most likely, that champion will be a physician (hematologist or general internist) but the Society will also review applications with an advanced practice professional with prescribing authority in the state of the center.
  • Members of the team may include:
    • A business official from the institution where the center will be housed.
    • Additional health care professionals who will work in the center.
    • A representative of the sickle cell disease community the center will serve.

Applicants can apply in advance of becoming a member of ASH. Members of selected teams that are eligible for ASH membership will be required to apply for membership between the notification of selection and the workshop in September 2020.

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Application Process

The 2020 ASH Sickle Cell Disease Centers Workshop application will be available on March 1, 2020, and will be due May 1, 2020. Additional information will be available at that time. back to top

Workshop Co-chairs

The co-chairs of the Sickle Cell Disease Centers Workshop will serve as faculty for the workshop and will be joined by additional sickle cell disease center leaders as well as faculty with backgrounds in financial analysis, social work and care coordination, and the development of a program’s workforce.

The workshop co-chairs are:

  • Julie Kanter, MD, University of Alabama at Birmingham
  • Sophie Lanzkron, MD, MHS Johns Hopkins University
  • Wally R. Smith, MD, Medical College of Virginia
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Terms and Conditions

As a condition of acceptance to ASH Sickle Cell Disease Centers Workshop, members of selected teams who are eligible for ASH membership will be required to maintain ASH membership for the duration of the program. Applicants need not be members on initial application.

All participants are also required to:

  • Adhere to all deadlines
  • Attend the entirety of the in-person workshop in Washington, DC
  • Attend as many webinars following the in-person workshop as possible
  • Make airline reservations through EWA Travel, ASH’s official travel agent
  • Complete the ASH Conflict-of-Interest form and abide by the ASH COI policy
  • Cite support from the American Society of Hematology in any publications resulting from the workshop
  • Respond to future inquiries from ASH regarding the status of their sickle cell disease center
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For questions about this workshop, please contact back to top