Center for Sickle Cell Disease Initiatives

Since 2015, ASH has collaborated with stakeholders to enhance access to care, prioritize meaningful research, and support global action. Recently, ASH launched the Center for Sickle Cell Disease Initiatives to further this commitment and streamline its programs for greater impact, ensuring sustainable improvements for those affected by SCD.

10 Years of Sickle Cell Disease Progress

In 2025, the American Society of Hematology commemorated 10 years of dedicated effort to strengthen the global response to sickle cell disease—convening partners, supporting progress, and helping to advance care and research for individuals living with SCD.

Quality Care

ASH is committed to improving care by collaborating with stakeholders and distributing resources to providers.

Clinical Practice Guidelines

ASH developed the 2019-2021 Clinical Practice Guidelines on Sickle Cell Disease using the GRADE methodology. These guidelines identify best practices for the management of SCD complications to improve the quality of care.

Sickle Cell Disease Advocacy

Since 2015, the Society has been dedicated to enhancing the outcomes for individuals living with Sickle Cell Disease. By collaborating with federal agencies, the U.S. Congress, and the U.S. Department of Health and Human Services, ASH continues to support various initiatives aimed at improving care and resources for those affected by SCD.

View How ASH Supports SCD

The Sickle Cell Disease Network

The ASH Research Collaborative SCD Network® was launched with the mission of fostering collaborative partnerships to accelerate progress in research and improve outcomes for individuals with sickle cell disease. 

Visit The SCD Network

Classical Hematology Curriculum: Sickle Cell Disease

ASH supports SCD care providers by developing online courses to enhance quality care, professional development, and expertise. View a select list of courses on ASH Academy.

Explore the Curriculum

Research

The ASH Center for SCD Initiatives is committed to progressing research in SCD by targeting critical needs and generating powerful, real-world evidence to create impact and change.

SCD Research Priorities

ASH has developed a list of priorities that will serve as a crucial guide for SCD researchers over the next five years. These revised research priorities will drive progress towards advancing treatment and care.

View the Priorities

ASH Research Collaborative

The ASH Research Collaborative (ASH RC) was developed in 2018 to foster collaborative partnerships and help improve the lives of people affected by blood diseases. The ASH RC developed the Data Hub and a SCD Research Network to collect key information and identify gaps to advance SCD research and treatment.

Global Action

ASH's Global Programs aim to improve access to care and unite Sickle Cell Disease (SCD) partners to amplify the voice of the SCD stakeholder community, ultimately enhancing outcomes for individuals living with SCD.

Consortium on Newborn Screening in Africa (CONSA)

ASH is focused on raising awareness of SCD globally by partnering with global organizations to build SCD-focused education. The Society founded the Consortium on Newborn Screening in Africa (CONSA) to demonstrate the benefits of newborn screening and early interventions for children with SCD in sub-Saharan Africa.


Sickle Cell Disease Coalition

The Sickle Cell Disease Coalition (SCDC) was formed to amplify the voice of the Sickle Cell Disease stakeholder community to improve outcomes for individuals with SCD.

View the SCDC Website

Get Involved

Donate

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Advocate

Help advocate for the importance of blood disorder care and research by using our toolkit to bring awareness to risk factors, symptoms, treatments, and prevention strategies for blood disorders.

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Join

Join a diverse community of more than 18,000 hematologists who are working to conquer blood diseases worldwide.

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