SCD Resources for Clinicians

The American Society of Hematology (ASH) is committed to helping those who treat sickle cell disease (SCD) provide quality care, continue their professional development, and enhance their knowledge and expertise. As part of the Society’s larger effort to conquer SCD worldwide, ASH has developed the following resources for clinicians working to advance outcomes for persons with this disease.

ASH has also published five new evidence-based clinical practice guidelines on the management of acute and chronic complications of SCD.

SCD Pocket Guides

Evidence-based pocket guides developed by ASH to help practitioners improve the quality of care provided to patients with sickle cell disease

Pediatric to Adult Hematologic Care Transition Toolkit

Assessment and summary forms designed to facilitate conversations between patients, parents, and physicians as the patient transitions to adult care

Learn more

SCD Articles in Blood

Articles on sickle cell disease published in Blood, the official journal of the American Society of Hematology

Learn more

SCD Patient Resources

An overview of sickle cell disease for patients, including an explanation on the difference between sickle cell trait and sickle cell disease

Learn more

Resources for SCD Pain Management

Information and resources addressing issues related to pain management from vested stakeholder groups

Pain management resources

Benign Hematology Curriculum

A series of videos designed to supplement education classical hematology for fellows

Online courses

SCD Treatment Demonstration Regional Program

In order to increase provider confidence in treating in individuals with SCD, grantees of the Health Resources and Services Administration’s (HRSA) SCD Treatment Demonstration Regional Program are using the Project ECHO® (Extension for Community Healthcare Outcomes) model of telementoring and training. The program’s objective is to connect providers with SCD experts so that they can increase their knowledge about best practices in managing individuals with this complex disease.

To learn more about the program, please contact the program lead in your region.

RegionContact and Project Lead
Northeast Region
Connecticut, Delaware, District of Columbia, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, Virginia, and West Virginia		Primary Contact: 
Bailey House 
Phone: 443-287-0608 
lwhitem1@jhmi.edu

Principal Investigator: Rosalyn Stewart, MD 
Johns Hopkins Medicine
Southeast Region 
Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and Tennessee		Primary Contact: 
Shirley H. Miller, MA 
Phone: 980-442-2535 
shirley.miller@carolinashealthcare.com

Principal Investigator: Ifeyinwa (Ify) Osunkwo, MD 
Carolinas HealthCare System, Charlotte, NC
Midwest Region
Illinois, Indiana, Michigan, Minnesota, North Dakota, Ohio, South Dakota, and Wisconsin		Primary Contact and Principal Investigator: 
Lisa Shook, MA 
Cincinnati Children’s Hospital, Cincinnati, OH 
Phone: 513-636-7541 
lisa.shook@cchmc.org
Heartland and Southwest Region
Arkansas, Iowa, Kansas, Louisiana, Missouri, Nebraska, Oklahoma, and Texas		Primary Contact: 
Regina A. Abel, PhD 
Phone: 314-286-1649 
abelr@wustl.edu

Principal Investigator: 
Allison A. King, MD 
Washington University in St. Louis, St. Louis, MO
Pacific Region
Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming		Primary Contact: 
Shalini Vora 
Phone: 714-600-479 
svora@c3dibd.org

Principal Investigator: 
Diane J. Nugent, MD 
Center for Inherited Blood Disorders, Orange, CA

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