American Society of Hematology

Access Programs for Eculizumab


Updated on: February 17, 2016

Drug Company Assistance

Doctors wishing to treat patients with eculizumab must first register with the Risk Evaluation and Mitigation Strategy program (REMS).  This webpage will provide links to important documents like the Prescriber Introductory Letter and Enrollment Form and the Patient Introductory Letter and Voluntary Enrollment Form.

The One Source Treatment Support program provides case managers to assist patients with their eculizumab therapies.  Call 1-888-765-4747 to receive personalized support from a case manager.  To read more about One Source, please see the Alexion Pharmaceuticals access website.

Foundation Assistance

The National Organization for Rare Disorders (NORD) has an assistance program specifically helping patients with Paroxysmal Nocturnal Hemoglobinuria (PNH).  In some cases, they may be able to assist with infusion costs for both uninsured and underinsured patients.  They may also provide other financial assistance for other expenses related to patient care.  For more information, please call 1-800-999-6673, ext. 324.

The PNH Research and Support Foundation can provide limited amounts of funding for disease related expenses not covered by insurance.  For more information, please send them an email, or call at 1-888-582-9993.

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