ASH Heads to Capitol Hill in Support of Hematology Research

George Weiner, MD

Chair, ASH Committee on Government Affairs

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In early March, with Washington still abuzz with the uncertainty surrounding health reform, ASH Committee on Government Affairs members met with Representatives, Senators, and senior staff from more than 25 congressional offices to share ASH’s legislative priorities as part of the Committee’s annual Capitol Hill Day.

Committee members shared ASH’s “Principles for Health-Care Reform” and the Society’s support for increasing coverage to the uninsured and under-insured, improving Medicare physician payment, maintaining access to specialists, and increasing access to preventive services. They also expressed concern about the instability in Medicare physician payment and urged congressional support for legislation that will provide a positive update in fees as well as a permanent replacement for the flawed formula currently used to calculate Medicare physician fees.

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The Committee also focused on advocating for increased funding for biomedical research, which was a challenging task given the tight federal budget situation. ASH Committee members described the many advances made possible through federally funded hematology research. They urged Congress to maintain the commitment it made to NIH with the short-term funding provided recently through the American Recovery and Reinvestment Act and urged Congress to provide predictable and sustained long-term growth in NIH funding in the fiscal year 2011 budget and beyond. To further support NIH-funded research, the Committee shared ASH recommendations for language that accompanies the annual funding bill that would encourage research in the field of regenerative medicine and propose simplifying clinical trials oversight.

One of the highlights of this year’s Capitol Hill Day was meeting with Rep. Doris Matsui (D-CA) to present her with the 2009 ASH Award for Public Service. Rep. Matsui has been a champion of issues related to bone marrow failures and hematologic malignancies since taking office in 2005 following the death of her husband, Rep. Robert Matsui, from complications related to myelodysplastic syndrome (MDS).

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Rep. Matsui thanked the Committee for the award and for all of the Society’s advocacy efforts. She was particularly appreciative of ASH’s efforts to gain congressional support for the Bone Marrow Failure Disease Research and Treatment Act (HR 1230), legislation Rep. Matsui introduced to increase the federal government’s commitment to researching and treating acquired bone marrow failure diseases.

Members of the ASH Government Affairs Committee participate in Hill Day, congressional visits, and ASH grassroots activities because they know such efforts make a difference. Our legislative representatives want to hear from us. Every ASH member can play an important role in the Society’s advocacy efforts. You can also have your voice heard in the halls of Congress by participating in the ASH Grassroots Network and visiting the ASH Advocacy Center. For more information about ASH advocacy efforts and the ASH

Grassroots Network, visit www.hematology.org/takeaction, or contact the ASH Policy & Practice Department at 202-776-0544.

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